I put Sarah's weight loss out to my Rett support group as it is very common with the kiddos. I have gotten some great suggestions to supplement her diet. It will be interesting to see what she thinks of the additions. Things like boost pudding, carnation instant breakfast in her whole milk, half and half instead of milk, various ready made meals full of chicken, mashed potatoes, stuffing, veggies...just lots of great ideas.
I had another thought too. I put Sarah on the birth control pill over the summer to ease up her cramps, etc and it has been working great for her. However, I am wondering if it could possibly be decreasing her appetite, thus the weight loss. From doing some reading I see that it can cause weight gain or weight loss.
Just something to keep in the back of my mind as we go forward here.