Kyphosis

So Sarah has always had some degree of kyphosis(hunching forward). She also has a curve where the spine twists on itself, like a corkscrew. Neither condition lends itself to surgery, unless really severe. She has had both of these conditions since she was a baby.
At her last x ray, her kyphosis measured at 94 degrees, which would be terrible news if her spine was fixed at that curve.But, it is flexible, meaning it bends and unbends, somewhat.

There are two instances when Sarah's spine straightens as best it can. One is when she is in the stander and the other is when she sleeps on her stomach. So, I snuck in this afternoon when she was taking a nap and snapped a couple of photos.

Here her head is to the right. You can see a little curve. What you now see is fixed. It is as straight as it will go.

In this pic her head is to the left. Same curve, opposite side view. Not TOO bad.

Constrained

Warning: not my usual uplifting post.


I feel very constrained. By Sarah's care and by finances. There are many things I would like to do that go on around here. But I can't. Either Sarah wouldn't be able to tolerate it or I can't afford it. I especially am aware of it at holidays. Everyone is doing fun things and I can't. Or if I do try, it will inconvenience someone else on their holiday, as Sarah will need care. Do you now how long its been since I've seen fireworks? Or swam in the ocean or in a pool? Or been on a boat? Or had fun? I can't even remember. It's really, really hard. 
For instance, just tonight, I see lots of people jogging or walking their dogs or pushing strollers past the house, so I decide to take Sarah out for a walk. Well, she gets upset with the putting on of a sweatshirt, starts crying and I give up. Forget it. We can't even do that.
I want to go to the parade tomorrow. I want to see fireworks. Not gonna happen.

Suck it up Les.