Saturday, April 28, 2007

Her Eyes




Do you see these beautiful blue eyes? They have been declared Legally Blind. I received the notification today in the mail from the State of Massachusetts. Sarah is legally blind. Ouch. This was harder for me to digest emotionally than the fact that she had Cerebral Palsy. That she couldn't walk. That she couldn't speak. That she had to be fed. You get the idea. For some reason the term "legally blind" totally upset me. My daughter cannot SEE?????? But, I have come to understand that this only means that she has a certain amount of trouble with her vision. A lot of trouble with it to be exact but she can still "see". She can read large print words, recognize colors and shapes etc. However, I know she has no depth perception. Everything looks flat to her. Objects placed close together look like a big blob to her. She cannot discriminate more than maybe 3 objects on a page. And those objects have to be brightly colored, clear and concise on a plain colored background...or else she cannot see them. She cannot tell who has entered the room she is in unless I tell her who they are or she recognizes their voice. Very much like a blind child. I always have to narrate what is going on around her because she cannot see it. Remember, the environment is 3 dimensional and she cannot make sense of that.

Anyway, she will be eligible for certain services because of this new "label". One bright spot. I still love those beautiful blue eyes.

Monday, April 23, 2007

Hair no more



Boohoo.....John cut his hair. He REALLY cut his hair. Every single piece is now about 1/2 inch long(short). I pleaded with him to leave it long. How can the senior with the BEST hair have NO hair? He just laughed. Uggh. So here are the before and after shots. It's not pretty.....

Tuesday, April 17, 2007

Media

I wonder about those parents who lost their children yesterday. How awful it must be to hear over and over on TV the cell phone recording of the gunman firing off all those shots in the engineering building. I imagine I would listen and wonder which of those shots killed MY child. Excruciating. Absolutely heartbreaking.

Monday, April 16, 2007

Tragedy

The horror
At VTech
Random death
Lots of crying tonight
For lost and injured
Children
Driven to hear
Jimmy's voice
Exquisitely aware
As we spoke of it all
How lucky I am
To have this chance
Once again
To soak him in
To connect
And for so many moms
Tonight grieving
The loss
Of their precious child
By a gunman
At college
Or in Iraq
I express great sorrow



Sirens

We need Sirens

On every college campus

That scream

Danger

Take cover

Protect yourself

From whatever





The Girls


Here are Sharon and Linda at the end of a PARTICULARLY long shift.....

Sunday, April 08, 2007

Happy Easter












She is resting

Friday, April 06, 2007

The Invite



Here it is-the culmination of four years for Jimmy-I am so proud
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