I am pretty sure I have found the answer to Sarah's troubles....
C-O-N-S-T-I-P-A-T-I-O-N
So now I am busy attacking things from both ends(so to speak).
I need a new long term plan for her. The previously successful plan is not doing the job anymore.
So to experienced parents I go, asking for advice, suggestions, success stories.
Constipation is a common issue with these kids. And it can sneak up on you over time.
Until, like Sarah, they are just not acting right, lethargic, and pale. For some kids there are increased seizures and large amounts of pain, loss of sleep and pure misery. And to top it all off, they cannot tell you what their discomfort is:(
So hopefully things will look up for Sarah in the next week or so. Fingers crossed.
